It’s amazing. Our 2 ½ year old woke up only a few days into CSM treatment with a smile and spoke words he never said before. Prior to treatment, he rarely spoke and woke up on the wrong side of the bed always. Every week early in treatment I remember thinking, “wow! What if we hadn’t done CIRS treatment, things would be so different.” Within a month, it was obvious both boys had new found energy and had more stamina riding bikes and playing. Both our boys became chimpanzees within 2-3 months. My oldest 3 months post diagnosis said “Mom, I don’t feel sick anymore.” That made my day!
When my kids stopped taking CSM though, there symptoms of fatigue, uber dramatic behavior, joint pain, and increased breathing issues returned. They kept having reexposure type issues (we thought) but ultimately it became clear they needed immune support measures and something beyond CIRS was going on too. They had congenital lyme as well.
We do know families with CIRS whose kids finished CSM treatment and had no further complications and a smooth recovery. For some kids it may be a smooth process while others more complicated. Ultimately, focus attention on root causes of health issues with your health care provider who focuses on healing and not just treating the symptoms. For us, it was good taking the progressive approach, focusing on CIRS treatment first and then, progressing to other health topics as they came up and needed addressing.
Your kids can recover. The younger the kids, the faster the recovery from CIRS it is said.
For more info related to healing from CIRS check out my blog Healing from CIRS
Written Aug 15, 2018 Author: MyKidsHealthJourney
My Kids Healing Journey from CIRS and Lyme 